Resumen
Este estudio investigó la viabilidad y utilidad de una herramienta en línea para monitorear la espasticidad en personas con paraplejia espástica hereditaria o accidente cerebrovascular crónico que reciben tratamiento con toxina botulínica.
Se midió el éxito en la reclutamiento y adherencia al monitoreo en tres instituciones de rehabilitación.
Se utilizó la Escala de Usabilidad del Sistema (SUS) y entrevistas con pacientes y proveedores de atención médica para analizar cuantitativa y cualitativamente la herramienta.
La adherencia y el éxito en la reclutamiento fueron mayores en personas con paraplejia espástica hereditaria.
Los participantes informaron que el monitoreo en línea puede contribuir a la gestión de la espasticidad si se adapta a sus necesidades y se integra fácilmente en sus rutinas diarias.
Monitoreo Online de Espasticidad: Beneficios en Fisioterapia
El monitoreo online de la espasticidad es crucial para optimizar el tratamiento con toxina botulínica en pacientes con paraplejia espástica hereditaria o accidente cerebrovascular crónico. Esta herramienta permite a los fisioterapeutas un seguimiento eficiente, mejorando la calidad de vida de los pacientes y potenciando la gestión en clínicas de fisioterapia.
Abstract original
Online monitoring of focal spasticity treatment with botulinum toxin in people with chronic stroke or hereditary spastic paraplegia: a feasibility study
Objective: To investigate the feasibility and usability of an online spasticity monitoring tool amongst people with hereditary spastic paraplegia or chronic stroke receiving botulinum toxin treatment, and their healthcare providers.
Methods: Mixed methods cohort study, measuring recruitment success and adherence to the monitoring in 3 rehabilitation institutions. In addition, the System Usability Scale (SUS) and interviews with patients and their healthcare providers were used for quantitative and qualitative analysis, respectively. A deductive directed content analysis was used for qualitative evaluation.
Results: Of the 19 persons with hereditary spastic paraplegia and 24 with stroke who enrolled in the study, recruitment success and adherence were higher amongst people with hereditary spastic paraplegia compared with stroke. Usability was found "marginal" by rehabilitation physicians and "good" by patients and physical therapists (SUS scores 69, 76, and 83, respectively). According to all participant groups, online monitoring potentially contributes to spasticity management if it is tailored to the actual needs and capabilities of patients, and if it can easily be integrated into the daily/working routines of all users.
Conclusion: Online monitoring of spasticity in people with hereditary spastic paraplegia or stroke receiving treatment with botulinum toxin may be feasible, provided that the monitoring tool is tailored to the needs of all users.
| Autores | Hans C J W Kerstens Maarten J Nijkrake Bert J M De Swart Ria W G Nijhuis-van der Sanden Marije Vos-van de Hulst Gery J Bos Alexander C H Geurts Philip J Van der Wees |
| revista | J Rehabil Med |
| DOI | 10.2340/jrm.v55.6572 |